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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Friday, September 9, 2011

We're home!

Praise the Lord we got home from the hospital this afternoon. There really is "no place like home." Lilly was SO happy to get home and take a bath and sit in her bouncy chair and do her little routines. She's been so smiley and content. A different baby than the one at the hospital.

I took several pictures at the hospital on my cell phone. Below are a couple from yesterday.

Lilly snuggled in our wrap on me, napping while waiting for the heart cath to begin:




Lilly wide awake and alert shortly after the heart cath is over. She had to have her IV in her head. Her arm veins just collapse so easily. (Hate that tape in her hair! We had to cut some hair to get it out.):



The perfect quilt for Little Firecracker - handmade for Lilly by our sweet genetic counselor:




FINALLY asleep after a very very long day:



4 comments:

  1. Poor Lilly. She had no idea that she was going to the hospital! :(

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  2. Dearest Lilly and Mama. How brave you have been, and Lilly you are doing so well!. I like the way you have your fingers open. Well done. SO happy you are home, you treasure. Remember Carol in NZ loves you with all her heart.xx

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  3. Lilly was SO happy to get home and take a bath and sit in her bouncy chair and do her little routines. She's been so smiley and content. A different baby than the one at the hospital.

    WELL! Let's send the Cardiologist who won't do her surgery this news.
    Doubt he thought this little "OUTCOME" would have enough intelligence to know she is home like the rest of us and glad to be there. (My blood is still boiling over that one.) LOL...wonder what he thought of Lilly's fat legs and arms???

    The quilt is so beautiful. (I like that it has pinwheel for the pattern as it makes one think of the ones you see on Independence Day. Clever quilter. Thank you, sweet Genetic Counselor for that gift of love for our Lilly. YOU are a special person, too.

    Love,
    Aunt Shisshy

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  4. Well Miss Lilly, one of your biggest blog fans had a heart ablation on Friday but I didn't get a pretty quilt! You continue to inspire young and old with your strength, courage and family. Lord bless you as you continue to heal. I'm praying for you.

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